As part of the Our Views, Our Voices initiative, the NCD Diaries are a participatory, community-based and multimedia storytelling project that illustrates and highlights individual lived experiences and calls for action on NCDs. The NCD Diaries use rich and immersive multimedia approaches to share lived experiences to drive change, using a public narrative framework.
The third series of the NCD Diaries project is based on the theme: my healthcare providers’ impact on my NCD Journey. Through their Diaries, the lived experience advocates shed light on this very foundational relationship between people living with NCDs and their healthcare providers, celebrating positive experiences as well as highlighting challenges.
I participated in this series, sharing my experience as a caregiver for my brother who is epileptic. When my parents died, I took over the responsibility of taking care of my brother. I have learnt a lot throughout the journey; the patience, the resilience and the need to wear a tough skin even in the wake of excruciating moments as a caregiver.
I am sharing my story because I believe that through sharing, I can inspire people living with NCDs and also my fellow caregivers. I believe caregivers have an intrinsic role to play and therefore should be involved in the whole treatment and management cascade for NCDs, especially the less talked about NCDs.
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