The Global NCD Alliance is implementing the NCD Diaries project as part of the Our View, Our Voices Initiative. Recognizing that people living with chronic diseases (Non-Communicable Diseases) are not just recipient of services but also co-creators of solutions, the NCD Alliance is giving them an opportunity to be heard and most importantly, be meaningfully involved in NCDs advocacy.
The NCD Diaries project supports individuals to share their lived experiences of NCDs, drawing on their unique local contexts, challenges faced and their aspirations and recommendations to drive change on NCDs. NCDA supports individuals in contextualizing their lived experiences of NCDs while reflecting on the key pillars of the Advocacy Agenda of People Living with NCDs. Diarists are also be encouraged to crystallize and put forward their calls for action on NCDs through the narrative of their NCD Diaries.
Diarists are selected through a competitive process which involves invitation for application, screening and rigorous selection process. Those selected are required to demonstrate their deep understanding of the issue that affect people living with NCDs. The diarist can be caregivers (with lived experience) and People Living with NCDs themselves. For the third Series of the NCD Diaries, NCDA will be seeking to support and promote NCD Diaries that highlight the impact of healthcare providers on one’s NCD journey.
I am particularly proud to have been selected to participate in this innovative project that seeks to improve the health outcomes of the PLWNCDs. As a caregiver of my epileptic brother, I am bringing to the project a rich experience on how to support epileptic patients. I will be doing visual diary format. Similarly, in my capacity as the Chief Program Officer at Stowelink, I will be able to contribute to conversations around how healthcare providers can support NCD patients in their treatment cascade. As a lived experience advocate, I will have the opportunity to shed light on the foundational relationship between people living with NCDs and their healthcare providers. The relationship between people living with NCDs and their health providers is a key component of NCD care delivery.